Consultation outcome

New health data security standards and consent/opt-out model

• From: Department of Health and Social Care
• Published: 6 July 2016
• Last updated: 25 February 2020 — See all updates

This was published under the 2015 to 2016 Cameron Conservative government

This consultation has concluded

Read the full outcome

Your Data: Better Security, Better Choice, Better Care

PDF, 998 KB, 84 pages

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Detail of outcome

‘Your Data: Better Security, Better Choice, Better Care’ is the government’s response to:

• the National Data Guardian for Health and Care’s ‘Review of Data Security, Consent and Opt-Outs’
• the public consultation on that review
• the Care Quality Commission’s Review ‘Safe Data, Safe Care’

It sets out that the government accepts the recommendations in both the National Data Guardian review and the Care Quality Commission review.

It also reflects on what we heard through consultation to set out immediate and longer-term action for implementation.

Following discussions with the National Data Guardian, ministers have agreed that type 1 opt-outs will remain in place until September 2020 at the earliest, when the position will be reviewed.

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Original consultation

Summary

Seeks views on the proposed data security standards and new consent and opt-outs model for data sharing in the NHS and social care.

This consultation ran from
9:30am on 6 July 2016 to 11:45pm on 7 September 2016

Consultation description

This consultation seeks views on the proposed data security standards and the consent/opt-outs model from health and care professionals and organisations and the public.

This follows the independent review of data security, consent and opt-outs by National Data Guardian Dame Fiona Caldicott. The review includes:

• 10 new data security standards
• a method of testing compliance with these standards
• a new consent model for data sharing in health and social care

Documents

National Data Guardian for health and care’s review of data security, consent and opt-outs

PDF, 446 KB, 17 pages

Response form (print version)

MS Word Document, 117 KB

Published 6 July 2016
Last updated 25 February 2020 + show all updates

1. 25 February 2020

   Added line to 'detail of outcome' section that type 1 opt-outs will remain in place until September 2020.

2. 12 July 2017

   Added ‘Your Data: Better Security, Better Choice, Better Care’, which is the government’s response to the consultation on the National Data Guardian for Health and Care’s review of data security, consent and opt-outs; and to the Care Quality Commission’s review ‘Safe Data, Safe Care’.

3. 6 July 2016

   First published.