Guidance
[Withdrawn] Annex A: collections and data flows
Updated 4 May 2023
Applies to England
© Crown copyright 2023
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This publication is available at https://www.gov.uk/government/publications/care-data-matters-a-roadmap-for-better-data-for-adult-social-care/annex-a-collections-and-data-flows
Annex A provides a detailed list of all national data flows and collections that currently exist. These are broken down into 2 categories:
- national collections which were set up specifically for adult social care sector needs
- wider national collections which serve a wider purpose but can be used to fulfil adult social care sector needs
A majority of these collections are published, at various levels of aggregation. Published collections are flagged with an asterisk (*) in the tables below. The tables use acronyms for the following bodies and organisations:
- Care Quality Commission (CQC)
- Department for Digital, Culture, Media and Sport (DCMS)
- Department for Health and Social Care (DHSC)
- Department for Levelling Up, Housing and Communities (DLUHC)
- Department for Work and Pensions (DWP)
- Local Government Ombudsman (LGO)
- North of England Commissioning Support Unit (NECS)
- NHS Test and Trace (NHS T&T)
- Office for National Statistics (ONS)
- United Kingdom Health Security Agency (UKHSA)
National data collections specific to adult social care
Table 1: List of national data collections specific to adult social care
| Collection name | Who the information is about | Who provides the data | Organisation collecting the data | Organisation holding the data |
|---|---|---|---|---|
| Complaints and information of concern | Providers | People who draw on care or unpaid carers | CQC (executive public body) | CQC (executive public body) |
| CQC Care Directory Ratings* | Providers | CQC | CQC (executive public body) | CQC (executive public body) |
| CQC changes, events and incidents notification* | People who draw on care | Providers | CQC (executive public body) | CQC (executive public body) |
| CQC Market Oversight | Providers | Providers | CQC (executive public body) | CQC (executive public body) |
| CQC Provider Information Return | Providers | Providers | CQC (executive public body) | CQC (executive public body) |
| Give feedback on care | Providers | People who draw on care or unpaid carers | CQC (executive public body) | CQC (executive public body) |
| Safeguarding alerts and concerns | Providers | People who draw on care or unpaid carers | CQC (executive public body) | CQC (executive public body) |
| Improved Better Care Fund quarterly reporting* | Local authority | Local authority | DLUHC (government department) | DLUHC (government department) |
| Adult social care complaint reviews | Local authority and providers | People who draw on care | LGO (public funded body) | LGO (public funded body) |
| NHS Continuing Healthcare and NHS-funded Nursing Care data* | People who draw on care | Providers | Care Providers | NHS England |
| Adult Social Care Finance Return* | Local authority | Local authority | NHS England | NHS England |
| Adult Social Care Survey* | People who draw on care | People who draw on care | Local authority | NHS England |
| Deferred Payment Agreements return* | People who draw on care | Local authority | Local authority | NHS England |
| Deprivation of Liberty Safeguards* | People who draw on care | Local authority | Local authority | NHS England |
| Guardianship under the Mental Health Act* | People who draw on care | Local authority | NHS England | NHS England |
| Safeguarding Adults Collection* | People who draw on care | Local authority | Local authority | NHS England |
| Short and Long Term Support* | People who draw on care | Local authority | Local authority | NHS England |
| Survey of Adult Carers in England* | Carers & People who draw on care | Carers | Local authority | NHS England |
| Capacity Tracker* | Providers | Providers | NECS (executive public body) | NHS England & DHSC (government department) |
| Delayed Transfers of Care* | People who draw on care | NHS Funded Services | NHS funded services | NHS England |
| ASC Workforce Data Set* | Providers | Providers | Skills for Care (public funded body) | Skills for Care (public funded body) |
Wider national data collections
Table 2: List of wider national data collections
| Collection name | Who the information is about | Who provides the data | Organisation collecting the data | Organisation holding the data |
|---|---|---|---|---|
| Community mental health survey* | People who draw on care | People who draw on care | CQC (executive public body) | CQC (executive public body) |
| Community Life survey* | People who draw on care | People who draw on care | DCMS (government department) | DCMS (government department) |
| PPE e-Portal* | Providers | Providers | NHS Supply Chain | DHSC (government department) |
| English Housing Survey* | People who draw on care | People who draw on care | DLUHC (government department) | DLUHC (government department) |
| Revenue Account collection: Local authority revenue expenditure and financing* | Local authority | Local authority | DLUHC (government department) | DLUHC (government department) |
| Family Resources Survey* | Carers & Social care workforce | Carers | DWP (government department) | DWP (government department) |
| Personal Independence Payment* | People who draw on care | People who draw on care | DWP (government department) | DWP (government department) |
| Disabled Facilities Grant | People who draw on care | Local authority | Local authority | Local authority |
| Assuring Transformation Data Set* | People who draw on care | Commissioners | NHS England | NHS England |
| Commissioning Data Sets | People who draw on care | NHS Funded Services | NHS England | NHS England |
| Community Services Data Set* | People who draw on care | Providers | NHS England | NHS England |
| Dementia Assessment and Referral* | People who draw on care | NHS Funded Services | NHS England | NHS England |
| Health and care of people with learning disabilities* | People who draw on care | GP Practice | GP Practice (NHS) | NHS England |
| Health survey for England* | People who draw on care | People who draw on care | NHS England | NHS England |
| Improving Access to Psychological Therapies data set | People who draw on care | NHS Funded Services | NHS funded services | NHS England |
| Learning Disabilities Health Check Scheme* | People who draw on care | GP Practice | GP Practice (NHS) | NHS England |
| Mental Health Services Data Set | People who draw on care | Providers | Care Providers | NHS England |
| Patient-Led Assessments of the Care Environment* | Providers | People who draw on care | NHS England | NHS England |
| Recorded Dementia Diagnoses from General Practice Extraction Service* | People who draw on care | NA, GPs collect anyway | GP Practice (NHS) | NHS England |
| Registers of People who are Blind or Partially Sighted* | People who draw on care | Local authority | Local authority | NHS England |
| Annual Population Survey* | Social care workforce | Individuals | ONS (government body) | ONS (government body) |
| Annual Survey of Hours and Earnings* | Social care workforce | Providers | ONS (government body) | ONS (government body) |
| Census* | Carers & People who draw on care & Social care workforce | Carers | ONS (government body) | ONS (government body) |
| Labour Force Survey* | Carers, Social care workforce | Carers | ONS (government body) | ONS (government body) |
| ONS Business Register and Employment Survey* | Social care workforce | Providers | ONS (government body) | ONS (government body) |
| Opinions and Lifestyle Survey* | Carers | Individuals | ONS (government body) | ONS (government body) |
| Vacancy Survey (job vacancies)* | Social care workforce | Providers | ONS (government body) | ONS (government body) |
| Care home resident death registrations* | People who draw on care | Providers | General Register Office (government body) | ONS and General Register Office (government body) |
| Adzuna* | Social care workforce | Providers | Adzuna (Private organisation) | ONS (government body) and Adzuna (Private organisation) |
| English Longitudinal Study of Ageing* | People who draw on care | People who draw on care | NatCen Social Research (Research organisation) | UK Data Service (public funded body) |
| UK Household Longitudinal Study - Understanding Society* | Carers | Carers | University of Essex (Research organisation) | UK Data Service (public funded body) |
| National Pathology Exchange (T&T data)* | People who draw on care | NHS Funded Services | NHS T&T | UKHSA (government body) |
How the data flows
These infographics represent examples of national adult social care data flows and the various organisations involved in collecting and holding data. These data flows generate from the subjects of the data (such as providers, local authorities, unpaid carers and people who draw on care and support), to the organisations that hold the data.
The infographics demonstrate data flows for:
- data collected through national collections that are set up specifically for adult social care needs
- data collected through wider national collections that serve a wider purpose but can be used to fulfil adult social care needs
Figure 5: data flows from the subject of the data to the organisation holding the data, captured via collections specific to adult social care
Figure 6: data flows from the subject of the data to the organisation holding the data, captured via wider collections
