Child behavioural (tier 2) weight management services commissioned by local authorities: minimum dataset technical guidance for submitters
Updated 25 May 2021
Applies to England
© Crown copyright 2021
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This publication is available at https://www.gov.uk/government/publications/child-and-family-weight-management-services-grant-apply-for-funding/child-behavioural-tier-2-weight-management-services-commissioned-by-local-authorities-minimum-dataset-technical-guidance-for-submitters
Introduction
In March 2021 the government announced a commitment to support people living with obesity to lose weight, with an investment in 2021 to 2022 of over £70 million in weight management services to be made available through local authorities and the NHS. The aim, as part of a place-based whole-systems approach to obesity and promoting healthier weight, is to enable children to have access to services and support to help them to lose weight and maintain a healthier weight.
In order to understand the impact of this, any local authority in receipt of this grant funding to establish or expand their tier 2 weight management services and offer of an extended brief intervention (EBI) must ensure all their providers collect data on all participants and their progress and return a minimum dataset to Public Health England (PHE). This is a condition of the grant. It is anticipated that more data items will be collected locally, and these collections must comply with national information standards (published by NHS Digital). This will ensure that weight management services data is collected consistently between services, and is also consistent with other health and care datasets.
This technical guidance and supporting submission spreadsheet describe the data items required by PHE to monitor the programme, in the first instance. This document explains the process for completion and submission of the dataset using the spreadsheet provided.
Data items for national submission
Data submission to PHE will be monthly in arrears for completed activity in the month from providers of extended brief interventions (EBI) and tier 2 weight management services, and will be divided into 7 separate ‘time points’:
For EBIs:
-
EBI offer
-
EBI first appointments
-
EBI completions
For child behavioural weight management services:
-
at referral into the programme
-
at week zero, as participants start the children’s weight management programme
-
at the end of the active phase of intervention
-
at follow-up at week 26
Depending upon the number of service cohorts operating during the period of time, that may mean that for some months, some or all of these time points will be nil returns: for example, the first return will not contain weight management completion or week 26 information.
The collection requires exactly one row of data for each participant at each relevant stage. It is expected that participants referred to weight management services will, in time, have a row relating to completion and a row relating to week 26. A unique (to the local provider) participant identifier must be supplied for each row at referral and in week zero, and will be used to link participants over time to assess levels of follow up at completion of the active phase of intervention and at week 26.
Brief details of the data items and the process for collection are described below.
Extended brief intervention information
Provider code
Data format and length: an255
Collection time points: offer
Restrictions: none
Purpose(s): present success factors at provider level
Commissioner code
Data format and length: an9
Collection time points: offer
Restrictions: latest county or local authority (for unitary authorities) code
Purpose(s): present success factors at commissioner level
Participant number
Data format and length: maximum an255
Collection time points: all
Restrictions: this must uniquely identify the participant within the provider but must not constitute personal information. For example, surname would be classified as personal information
Purpose(s): link participants between contacts
Consent for data sharing
Data format and length: a1
Collection time points: all
Restrictions: to record whether the participant has consented to their data being shared with PHE.
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
Purpose(s): ensure compliance with participant requirements
Age in years
Data format and length: maximum n2
Collection time points: offer
Restrictions: derived from date of birth (not part of this minimum dataset) and date of data collection
Purpose(s): establish whether any programmes are more effective for or taken up more by specific age groups
Gender
Data format and length: an1
Collection time points: as early in the EBI process as possible
Restrictions:
| Code | Text |
|---|---|
| 1 | Male |
| 2 | Female |
| 9 | Intermediate |
| Z | Not stated |
| X | Not known/not recorded |
Purpose(s): establish whether any programmes are more effective for specific genders
Gender identity same at birth
Data format and length: a1
Collection time points: as early in the EBI process as possible
Restrictions:
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
| Z | Not stated |
| X | Not known/not recorded |
Purpose(s): ensure PHE can monitor equality of access
Ethnicity
Data format and length: maximum an2
Collection time points: as early in the EBI process as possible
Restrictions:
| Code | Text |
|---|---|
| A | White: English/Welsh/Scottish/Northern Irish/British |
| B | White: Irish |
| T | White: Gypsy or Irish Traveller |
| C | White: Other White |
| D | Mixed/multiple ethnic group: White and Black Caribbean |
| E | Mixed/multiple ethnic group: White and Black African |
| F | Mixed/multiple ethnic group: White and Asian |
| G | Mixed/multiple ethnic group: Other mixed |
| H | Asian/Asian British: Indian |
| J | Asian/Asian British: Pakistani |
| K | Asian/Asian British: Bangladeshi |
| R | Asian/Asian British: Chinese |
| L | Asian/Asian British: Other Asian |
| N | Black/African/Caribbean/Black British: African |
| M | Black/African/Caribbean/Black British: Caribbean |
| P | Black/African/Caribbean/Black British: Other Black |
| W | Other ethnic group: Arab |
| S | Other ethnic group: Any other ethnic group |
| Z | Not stated |
| 99 | Not known/not recorded |
Purpose(s): ensure PHE can monitor equality of access
Lower layer super output area of residence
Data format and length: an10
Collection time points: as early in the EBI process as possible
Restrictions: derived from postcode of residence using Office for National Statistics Postcode lookup (NSPL)
See a complete list of lower layer super output areas
Purpose(s): ensure PHE can monitor equality of access
Date of offer
Data format and length: an10 CCYY-MM-DD
Collection time points: offer
Purpose(s): analysis on time from offer to first appointment
Date of first appointment
Data format and length: an10 CCYY-MM-DD
Collection time points: first appointment
Purpose(s): analysis on time from offer to first appointment
Date of completion
Data format and length: an10 CCYY-MM-DD
Collection time points: completion
Purpose(s): analysis on time from start to completion
EBI outcome
Data format and length: n1
Collection time points: completion
Restrictions:
| Code | Text |
|---|---|
| 1 | Referral to weight management services |
| 2 | Signposted to community support |
| 3 | Signpost to further information |
| 4 | Agree action/goal setting |
| 9 | No action |
Purpose(s): analysis of EBI outcomes
EBI parental awareness of child’s weight
Data format and length: n1
Collection time points: first appointment and completion
Restrictions:
| Code | Text |
|---|---|
| 1 | Very underweight |
| 2 | Underweight |
| 3 | Normal |
| 4 | Overweight |
| 5 | Very overweight |
Purpose(s): analysis of EBI outcomes
EBI parental concern about child’s future weight
Data format and length: n1
Collection time points: first appointment and completion
Restrictions:
| Code | Text |
|---|---|
| 1 | Unconcerned |
| 2 | A little concerned |
| 3 | Concerned |
| 4 | Fairly concerned |
| 5 | Very concerned |
Purpose(s): analysis of EBI outcomes
Weight management service information
Organisation and referral
Commissioner code
Data format and length: an9
Collection time points: referral only
Restrictions: latest county or local authority (for unitary authorities) code
Purpose(s): present success factors at commissioner level
Referral source
Data format and length: an1
Collection time points: Referral only
Restrictions:
| Code | Text |
|---|---|
| 1 | GP |
| 2 | Other health care professional |
| 3 | Non-health professional |
| 4 | Self-referral |
| 5 | Referred from EBI |
| X | Not known/not recorded |
Purpose(s): analysis on referral patterns to weight management services
Date of referral receipt
Data format and length: an10 CCYY-MM-DD
Collection time points: referral only
Purpose(s): analysis on time from referral to enrolment
Consent for data sharing
Data format and length: a1
Collection time points: all
Restrictions: to record whether the participant has consented to their data being shared with PHE.
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
Purpose(s): ensure compliance with participant requirements
Participant details
Participant number
Data format and length: maximum an255
Collection time points: optional for EBI, all other mandatory
Restrictions: this must uniquely identify the participant within the provider but must not constitute personal information. For example, surname would be classified as personal information
Purpose(s): link participants between contacts
Age in months
Data format and length: maximum n3
Collection time points: all
Restrictions: derived from date of birth (not part of this minimum dataset) and date of data collection
Purpose(s): establish whether any programmes are more effective for specific age groups
Lower layer super output area of residence
Data format and length: an10
Collection time points: referral only
Restrictions: derived from postcode of residence using Office for National Statistics Postcode Lookup (NSPL).
See a complete list of Lower Layer Super Output Areas
Purpose(s): ensure PHE can monitor equality of access
Gender
Data format and length: an1
Collection time points: week 0 only
Restrictions:
| Code | Text |
|---|---|
| 1 | Male |
| 2 | Female |
| 9 | Intermediate |
| Z | Not stated |
| X | Not known/not recorded |
Purpose(s): establish whether any programmes are more effective for specific genders
Gender identity same at birth
Data format and length: a1
Collection time points: week 0 only
Restrictions:
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
| Z | Not stated |
| X | Not known/not recorded |
Purpose(s): ensure PHE can monitor equality of access
Ethnicity
Data format and length: maximum an2
Collection time points: week 0 only
Restrictions:
| Code | Text |
|---|---|
| A | White: English/Welsh/Scottish/Northern Irish/British |
| B | White: Irish |
| T | White: Gypsy or Irish Traveller |
| C | White: Other White |
| D | Mixed/multiple ethnic group: White and Black Caribbean |
| E | Mixed/multiple ethnic group: White and Black African |
| F | Mixed/multiple ethnic group: White and Asian |
| G | Mixed/multiple ethnic group: Other mixed |
| H | Asian/Asian British: Indian |
| J | Asian/Asian British: Pakistani |
| K | Asian/Asian British: Bangladeshi |
| R | Asian/Asian British: Chinese |
| L | Asian/Asian British: Other Asian |
| N | Black/African/Caribbean/Black British: African |
| M | Black/African/Caribbean/Black British: Caribbean |
| P | Black/African/Caribbean/Black British: Other Black |
| W | Other ethnic group: Arab |
| S | Other ethnic group: Any other ethnic group |
| Z | Not stated |
| 99 | Not known/not recorded |
Purpose(s): ensure PHE can monitor equality of access
Disability type (up to 6 can be entered)
Data format and length: maximum an2
Collection time points: week 0 only
Restrictions:
| Code | Text | Comments |
|---|---|---|
| 1 | Behaviour and Emotional | Should be used where the child has times when they lack control over their feelings or actions. |
| 2 | Hearing | Should be used where the child has difficulty hearing, or need hearing aids, or need to lip-read what people say. |
| 3 | Manual and Dexterity | Should be used where the child experiences difficulty performing tasks with their hands. |
| 4 | Memory or ability to concentrate, learn or understand (Learning Disability) | Should be used where the child has difficulty with memory or ability to concentrate, learn or understand. |
| 5 | Mobility and Gross Motor | Should be used where the child has difficulty getting around physically without assistance or needs aids like wheelchairs or walking frames; or where the child has difficulty controlling how their arms, legs or head move. |
| 6 | Perception of Physical Danger | Should be used where the child has difficulty understanding that some things, places or situations can be dangerous and could lead to a risk of injury or harm. |
| 7 | Personal, Self-Care and Continence | Should be used where the child has difficulty keeping clean and dressing the way they would like to. |
| 8 | Progressive Conditions and Physical Health | Should be used where the child has any illness which affects what they can do, or which is making them more ill, which is getting worse, and which is going to continue getting worse (such as cancer, multiple sclerosis and fits). |
| 9 | Sight | Should be used where the child has difficulty seeing signs or things printed on paper, or seeing things at a distance. |
| 10 | Speech | Should be used where the child has difficulty speaking or using language to communicate or make their needs known. |
| XX | Other | Should be used where the child has any other important health issue including dementia or autism. |
| NN | No disability | |
| ZZ | Not stated | |
| X | Not known/not recorded | Default value |
Purpose(s): ensure PHE can monitor equality of access
Vulnerability type (up to 2 can be entered)
Data format and length: maximum an2
Collection time points: referral only
Restrictions:
| Code | Text |
|---|---|
| 1 | Looked after child |
| 2 | Child in need |
| 3 | Subject to a child protection plan |
| 4 | Entitled to an Education and Health Care Plan |
| NN | No vulnerabilities |
| ZZ | Not stated |
| X | Not known/not recorded |
Purpose(s): ensure PHE can monitor equality of access
Measurements
Date of measurement
Data format and length: an10 CCYY-MM-DD
Collection time points: weeks 0, completion and 26
Purpose(s): calculation of relevant success factors
Height in metres
Data format and length: n1.n2
Collection time points: weeks 0, completion and 26
Purpose(s): calculation of relevant success factors
Height measured by professional (as opposed to self-measurement)
Data format and length: a1
Collection time points: weeks 0, completion and 26
Restrictions:
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
Purpose(s): analysis of programme delivery methods
Weight in kilograms
Data format and length: n3.n3
Collection time points: weeks 0, completion and 26
Purpose(s): calculation of relevant success factors
Weight measured by professional (as opposed to self-measurement)
Data format and length: a1
Collection time points: weeks 0, completion and 26
Restrictions:
| Code | Text |
|---|---|
| Y | Yes |
| N | No |
Purpose(s): analysis of programme delivery methods
Key success factors
PHE will calculate and consider relevant service success factors nationally, and at local authority commissioner and provider level. These will be shared with the Department of Health and Social Care to evaluate the expansion of weight management services.
-
CWM1: percentage of offers of EBI which are taken up
-
CWM2: percentage of individuals who complete the EBI
-
CWM3: percentage of individuals who are referred to weight management services from EBI
-
CWM4: percentage of children who complete the active intervention (EBI or weight management service)
-
CWM6: percentage of individuals enrolled in the service from high risk groups
-
CWM7: percentage of children whose BMI centile is reduced from week zero, at completion of weight management service
-
CWM8: percentage of children who completed the weight management service whose BMI centile is reduced from week zero, at 26 weeks
For each measure, inequalities will be presented (exact details of presentation will depend on the detail and number of children).
Process for national submission
The associated minimum dataset reporting spreadsheet (excel file) for data submission can be used for data collection, or if a separate system is used, a report or export should be created to get the data into the right structure and format to paste into the reporting spreadsheet. Validation rules in the reporting spreadsheet enforce accurate data item formats, as well as pre-set or realistic values. Please note, only the details for children who have consented to have their data shared with PHE should be included in this reporting spreadsheet.
The reporting spreadsheet must have data for at least one, and at all of the collection time points, relating to activity in the month:
-
offers of EBI
-
EBI first appointments
-
EBI completions
-
referrals into weight management services
-
week zero of weight management service
-
completion of active phase of intervention of the weight management service
-
weight management service follow-up at week 26
Once complete, the reporting spreadsheet must be returned to PHE. The details of the submission process will follow. On receipt, PHE will confirm that all time points are valid, loading those that are and rejecting or ignoring those that are not.
Submission will be possible as soon as the month is complete for up to one month: during that period submitters can send the reporting spreadsheet as often as they wish. The system will overwrite the data each time, as long as the newer data is valid.
One month after the month end (at the end of the following month) no further submissions will be accepted.