Policy paper

Dementia Alliance International

Published 23 July 2018

This was published under the 2016 to 2019 May Conservative government

Form for submitting commitments for the Global Disability Summit 2018

Your organisation

Type of organisation: Civil Society Organisation

Name of organisation: Dementia Alliance International (DAI)

Charter for Change

Please read the attached Summit Charter for Change: the principal legacy of the Summit. If your organisation is happy to sign up to the Charter, please confirm by putting a cross in the box below.

My organisation signs up to the Summit Charter for Change: X

Your organisation’s commitments to achieve the rights of people with disabilities in developing countries

A. Commitments to eliminate Stigma and Discrimination

Please select the category which your commitment most relates to: Representation and empowerment of persons with disabilities

Please enter the exact wording of the commitment/s, including details of others who has supported its development (75 words limit): Kate Swaffer kateswaffer@infodai.org

DAI commits to provide a unified voice of strength, advocacy and support for the rights, individual autonomy and improved quality of life for everyone living with dementia around the world.

DAI commits to advocate for people with dementia, and build the capacity of people with dementia to advocate for themselves and others living with the disease globally.

Timeframe and/or implementation plan (75 words limit)

DAI will promote connection and dialogue between people with dementia and the wider dementia community and civil society, and work to ensure that the voices of those with dementia are listened to and honoured.

Please select the category which your commitment most relates to: Policy, legislation and its implementation

Please enter the exact wording of the commitment/s, including details of others who has supported its development (75 words limit):

DAI commits to enforce the human rights of people with dementia rights through the CRPD and other Conventions are reflected in national and international dementia policy and practice. We ask Member States to include people with dementia in the CRPD and in the 2030 Sustainable Development Goals. We are 50 million people without a voice, a number expected to rise to 152 million by 2050.

Timeframe and/or implementation plan (75 words limit)

DAI will work with other organizations and with governments to create change in issues and policies that affect people with dementia now and in the future.

Please select the category which your commitment most relates to: Stereotypes, attitudes and behaviours

Please enter the exact wording of the commitment/s, including details of others who has supported its development (75 words limit):

DAI commits to reduce the stigma, isolation and discrimination of dementia globally, by challenging the status quo of the current myths about the capacity of those with dementia, current diagnosis rates, pre and post diagnosistic care and by advocating for a social and disability model of support.

Timeframe and/or implementation plan (75 words limit)

DAI will promote connection and dialogue between people with dementia and their communities to combat the isolation and exclusion of people with dementia.

B. Commitments for Technology and Innovation

Please select the category which your commitment most relates to: Choose an item.

Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

DAI is committed to working with technology developers at the R&D stages, and reviewing stages of innovation and new technology, to ensure its relavence and usability for pthis cohort

Timeframe and/or implementation plan (75 words limit)

This is an on going commitment, and DAI currently works globally with IT companies, and researchers in this field

C. Commitments for Data Disaggregation

Please select the category which your commitment most relates to: Other

Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

DAI commits to advocate for implementation of the WHO Global Action Plan on the Public Health Response to Dementia 2017–2025 target that ‘50% of countries routinely collect a core set of dementia indicators through their national health and social information systems on which they report every two years by 2025’ (disaggregated by sex and age).

Timeframe and/or implementation plan (75 words limit)

The WHO Global Action Plan on the Public Health Response to Dementia sets targets from 2017–2025. DAI is working with governments and other organisations to ensure human rights are implemented within local, regional and national dementia plans and strategies, which are aligned to the Global Action Plan.

D. Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

DAI commits to champion the rights of women and girls affected by dementia as some of the most-under represented and marginalised persons with disabilities due to the combination of gender, condition and often age.

Timeframe and/or implementation plan (75 words limit)

DAI will help advocate for a gendered approach to global action on dementia, including in research, and to support those already involved in dementia policy and practice to get it right for every woman living with or affected by dementia around the world, so that no one is left behind in the 2030 Sustainable Development Goals.

E. Other Commitments

Please enter the exact wording of any other commitment/s that do not fall under the themes above, including details of others who have supported its development (75 words limit):

TACKLING STIGMA AND DISCRIMINATION

DAI is committed to tackling stigma and discrimination, still being experienced daily by people living with dementia. Even the ability to access this event with delegates, the fact we have NO spears representing the 50 million people living with dementia now, and the access has proven difficult, is an example of the systemic stigma we face. DAI will continue to advocate for Inclusion at every level.