Policy paper

Global Alzheimer's and Dementia Action Alliance

Published 23 July 2018

This was published under the 2016 to 2019 May Conservative government

Form for submitting commitments for the Global Disability Summit 2018

Your organisation

Type of organisation: Civil Society Organisation

Name of organisation: Global Alzheimer’s & Dementia Action Alliance (GADAA)

Charter for Change

Please read the attached Summit Charter for Change: the principal legacy of the Summit. If your organisation is happy to sign up to the Charter, please confirm by putting a cross in the box below.

My organisation signs up to the Summit Charter for Change: X

Your organisation’s commitments to achieve the rights of people with disabilities in developing countries

A. Commitments to eliminate Stigma and Discrimination

Please select the category which your commitment most relates to: Representation and empowerment of persons with disabilities

Please enter the exact wording of the commitment/s, including details of others who has supported its development (75 words limit):

GADAA commits to amplify the number of voices advocating and educating on dementia to tackle the stigma and discrimination those with the disability face.

Timeframe and/or implementation plan (75 words limit)

GADAA will connect its network of international civil society organisations (iNGOs) to work with each other and specialists (e.g. national Alzheimer associations led by Alzheimer’s Disease International, and people affected by dementia advocating via Dementia Alliance International) to recognise the part they can play in inclusive global action on dementia.

B. Commitments for Economic Empowerment

Please select the category which your commitment most relates to: Inclusive social protection systems

Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

GADAA commits to highlight the huge costs of dementia care - both formal and informal - for those living with the condition, their supporters, communities and countries; and how this contributes to the $1trillion annual cost of dementia globally.

Timeframe and/or implementation plan (75 words limit) GADAA will advocate for all actors to support implementation of the WHO Global Action Plan on the Public Health Response to Dementia 2017–2025 to ensure people affected by dementia are not disadvantaged.

C. Commitments for Data Disaggregation

Please select the category which your commitment most relates to: Other

Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

GADAA commits to advocate for the WHO Global Action Plan on the Public Health Response to Dementia 2017–2025 target that ‘50% of countries routinely collect a core set of dementia indicators through their national health and social information systems on which they report every two years by 2025’ (disaggregated by sex and age).

Timeframe and/or implementation plan (75 words limit)

The WHO Global Action Plan on the Public Health Response to Dementia sets targets from 2017–2025.

D. Commitments for Women and Girls with Disabilities

Please enter the exact wording of the commitment/s, including details of others who have supported its development (75 words limit):

GADAA commits to champion the rights of women affected by dementia as some of the most-under represented and marginalised persons with disabilities due to the combination of gender, condition and often age.

Timeframe and/or implementation plan (75 words limit)

GADAA will help its iNGO network shape a gendered approach to global action on dementia and to support those already involved in dementia policy and practice to get it right for every woman living with or affected by dementia around the world.

E. Commitments for people with disabilities in Humanitarian Contexts

Please enter the exact wording of the commitment/s, including details of others who has supported its development (75 words limit):

GADAA commits to provide technical input, build evidence and champion the rights and specific needs of those affected by dementia before, during and after humanitarian emergencies.

Timeframe and/or implementation plan (75 words limit)

GADAA will work with its humanitarian sector network members and partners to advocate that no one affected by dementia is left behind in humanitarian policy and programming.