Guidance

Congenital heart disease: information for parents

Information to help healthcare professionals speak with parents, following suspected or confirmed diagnosis of congenital heart disease.

• From: NHS England
• Published: 1 April 2012
• Last updated: 25 October 2024 — See all updates

Documents

Congenital heart disease (CHD): information for parents

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Details

This publication explains congenital heart disease, a condition screened for using an ultrasound scan as part of the NHS fetal anomaly screening programme (FASP).

The document explains:

• what the condition is
• how common it is
• how it is diagnosed and confirmed
• what treatment is available
• what the outlook for the baby is
• what happens next
• how likely it is to happen in future pregnancy
• where more support and information is available

This publication was previously published by Public Health England, which closed on 30 September 2021.

Published 1 April 2012
Last updated 25 October 2024 + show all updates

1. 25 October 2024

   Changed lead organisation. Removed references to Public Health England (PHE). Added clarification that publication was previously published by PHE.

2. 9 March 2020

   Replaced PDF with an updated HTML document.

3. 30 January 2019

   Updated leaflet following a review.

4. 1 April 2012

   First published.