Technical notice: transfer of National Disease Registration Service from Public Health England to NHS Digital
Published 1 October 2021
Applies to England
On 1 October 2021, as part of the government’s strategy to transform the public health system in England, responsibility, and management of a variety of data collections and services transfer from Public Health England (PHE) to other NHS bodies.
The responsibility for the management of the National Disease Registration Service (NDRS), a collection of data on all cancers, rare diseases and congenital anomalies diagnosed each year in England, is transferring from PHE to NHS Digital on 1 October 2021. NHS Digital will become the data controller for this data.
Bringing together NDRS’s and NHS Digital’s data, capability and technical expertise will provide significant benefits for patients, clinicians, and the wider health and social care system over coming years by providing a more comprehensive data service for the NHS.
There will be minimal change to current processes from 1 October and all communication channels will be maintained.