Guidance

Spinal muscular atrophy type 1: NCARDRS data briefing

National data on the prevalence of spinal muscular atrophy type 1 (SMA1) from the National Congenital Anomaly and Rare Disease Registration Service.

• From: Public Health England
• Published: 4 September 2019

Documents

Spinal muscular atrophy type 1: NCARDRS data briefing

Ref: GW-577

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Appendix 1: technical notes and calculating rates

Ref: GW-577

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Details

This report contains data on the incidence of spinal muscular atrophy type 1 (SMA1) based on Hospital Episode Statistics (HES), Office of National Statistics (ONS) mortality data and patient data held by the NCARDRS.

Appendix 1 provides further information on the background to this work and technical notes on the methods used.

Published 4 September 2019