NHS newborn blood spot (NBS) screening programme status codes
Updated 8 October 2024
Applies to England
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This publication is available at https://www.gov.uk/government/publications/status-codes-for-the-newborn-blood-spot-nbs-screening-programme/nhs-newborn-blood-spot-nbs-screening-programme-status-codes
Status code 01
Suggested term used in child health information system (CHIS)
Specimen received in laboratory.
Sub codes
Not applicable.
Description
The same value applies to all screening tests (relates to the blood spot card).
Additional data items to be provided with this status code and entered into CHIS electronically or manually:
- date sample taken
- date sample received in laboratory
- laboratory identifier
Status code 02
Suggested term used in CHIS
(Condition screened for) declined.
Sub codes and descriptions
Sub code 0201
Description: Declined, no history of being screened.
Sub code 0202
Description: Declined, screened in UK (as reported by parents) with no evidence of result.
Sub code 0203
Description: Declined, screened outside UK with evidence of result.
Sub code 0204
Description: Declined, screened outside UK with no evidence of result.
Sub code 0208
Description: Declined, due to epidemic.
Comment: This can be used for all future epidemics or pandemics.
Status code 03
Suggested term used in CHIS
(Condition screened for) Repeat or further sample required.
Sub codes and descriptions
Sub code 0301
Description: Too young for reliable screening.
Comment: This is applied when samples are taken less than 5 days of age. When this code is applied to severe combined immunodeficiency (SCID), no action is required until notified by the laboratory for a repeat request.
Sub code 0302
Description: Too soon after transfusion (< 72 hours).
Sub code 0303
Description: Insufficient sample.
Comment: Includes not enough blood, not soaked through.
Sub code 0304
Description: Unsuitable sample (blood quality): incorrect blood application.
Comment: Incorrect blood application technique. Includes multi-spotted, spotted both sides.
Sub code 0305
Description: Unsuitable sample (blood quality): compressed or damaged.
Comment: Includes compressed, evidence incomplete drying, stained glassine, scratched/abraded/ridged, liquid/water damage/contamination, discoloured spots.
Sub code 0306
Description: Unsuitable sample: day 0 and day 5 on same card.
Sub code 0307
Description: Unsuitable sample for cystic fibrosis (CF): possible faecal contamination.
Sub code 0308
Description: Unsuitable sample: NHS number missing or not accurately recorded.
Sub code 0309
Description: Unsuitable sample: Date of sample missing or not accurately recorded.
Sub code 0310
Description: Unsuitable sample: Date of birth not accurately matched.
Sub code 0311
Description: Unsuitable sample: Expired card used.
Sub code 0312
Description: Unsuitable sample: > 14 days in transit, too old for analysis.
Sub code 0313
Description: Unsuitable sample: Damaged in transit.
Comment: Includes water or liquid damage through outer postal envelope.
Sub code 0314
Description: Sickle: Too premature for testing.
Sub code 0315
Description: congenital hypothyroidism (CHT): Pre-term.
Sub code 0316
Description: CHT: Borderline result.
Sub code 0317
Description: CF: Inconclusive.
Sub code 0322
Description: Inadequate analyte recovery.
Comment: This code relates to SCID screening only and is a repeat generated by a laboratory process.
Status code 04
Suggested term used in CHIS
(Condition screened for) not suspected.
Sub codes and descriptions
Not applicable.
Status code 05
Suggested term used in CHIS
(Condition screened for) carrier.
Sub codes and descriptions
Not applicable.
Status code 06
Suggested term used in CHIS
Sickle cell disease not suspected, carrier of other haemoglobin.
Sub codes and descriptions
Sub code 0601
Description: Result consistent with haemoglobin C carrier.
Sub code 0602
Description: Result consistent with haemoglobin D carrier.
Sub code 0603
Result consistent with haemoglobin E carrier.
Sub code 0604
Result consistent with haemoglobin O-Arab carrier.
Status code 07
Suggested term used in CHIS
(Condition screened for) not suspected, other disorders follow up.
Sub codes and descriptions
Not applicable.
Status code 08
Suggested term used in CHIS
(Condition screened for) suspected.
Sub codes and descriptions
Not applicable.
Status code 09
Suggested term used in CHIS
(Condition screened for) not screened or screening incomplete.
Sub codes and descriptions
Sub code 0901
Description: CF: > 8 weeks, too old for screening.
Sub code 0902
Description: All screens: > 1 year, too old for screening.
Sub code 0903
Description: Moved out of area.
Sub code 0904
Description: Not contactable, reasonable efforts made.
Comment: Can also be used where screening is accepted, but not completed. Complete card and send to the laboratory.
Sub code 0905
Description: Baby died.
Sub code 0906
Description: Not required, previous valid result.
Sub code 0911
Description: Not screened for or screening incomplete: not offered.
Comment: SCID not offered. This may relate to a baby in a non-SCID screening area.
Status code 10
Suggested term used in CHIS
Haemoglobin S not suspected (by DNA). No other haemoglobin, thalassemia excluded.
Sub codes
Not applicable.
Description
Applies to sickle cell disease screening only.
Status code 11
Suggested term used in CHIS
(Condition screened for) delayed due to epidemic.
Sub codes
Not applicable.
Comment: This can be used for all future epidemics and pandemics.