Transparency data

Fetal, maternal and child health group

Updated 10 January 2024

© Crown copyright 2024

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This publication is available at https://www.gov.uk/government/publications/uk-national-screening-committee-register-of-interests/fetal-maternal-and-child-health-group

This register records declarations made by members in respect of interests they have that are relevant to the remit of the UK NSC’s fetal, maternal and child health (FMCH) group.

Dr Helen Bedford

  • none

Dr Felicity Boardman

  • co-applicant for the NIHR HTA funded study HTA NIHR127489 - valuing the benefits and harms of antenatal and newborn screening programmes in health economics assessments
  • expected research grant from Novartis Gene Therapies, exploring attitudes towards newborn screening for SMA amongst the general public, affected families and clinicians; this grant is yet to start

Dr James Bonham

  • President of the International Society of Neonatal Screening

Dr Philippa Brice (PPV)

  • Deputy Director of the PHG Foundation, a health policy think-tank and linked exempt charity of the University of Cambridge (paid position)

  • non-executive director and deputy chair of Healthwatch Cambridgeshire and Peterborough, a statutory regional health and social care champion organisation (unpaid position)

Professor Louise Bryant

  • none

Jane Fisher (PPV)

  • none

Hilary Goodman

  • screening and immunisations manager for the NHS England South East Region Public Health Team

Dr Kathryn Johnson

  • clinical lead for the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) hosted by NHS England

Prof Asma Khalil

  • Obstetric Senior Lead, National Maternity and Perinatal Audit (NMPA)
  • developer and owner of the intellectual property of an innovative platform for Home Monitoring of Blood Pressure in Pregnancy (HAMPTON)
  • Vice President, Royal College of Obstetricians and Gynaecologists
  • Treasurer and Trustee, International Society of Ultrasound in Obstetrics and Gynecology
  • Director, Fetal Medicine Unit, Liverpool Women’s Hospital
  • Editor-in-Chief, Best Practice & Research Clinical Obstetrics & Gynaecology
  • Commercial and non-commercial research grants – NIHR, Health Foundation, EU, MRC, BHF, Innovate UK
  • Active academic researcher in a wide range of obstetric topics

Dr Robin Lachmann

  • consulting fees from Kyowa Kirin International
  • financial interests in Biomarin, SanofiGenzyme, Kintai Therapeutics, Mendelian and Nestle Health Sciences
  • received honoraria and/or travel expenses from SanofiGenzyme, Takeda, SOBI, Kyowa Kirin International, Recordati Rare Diseases Foundation
  • received research funding from: Kyowa Kirin International, Nutricia
  • medical advisor to ALEX TLC
  • chair the Scientific Committee of the Recordati Rare Diseases Foundation

Bertie Leigh

  • occasional lectures for various professional organisations, some of which are paid
  • unpaid trustee of medical research charities CHARM (Charity for Research into Miscarriage at Imperial College) and the Griffin Institute (surgical training and research at Northwick Park)
  • lay trustee on the Council of the British Orthopaedic Association

Dr Peter McEwan

  • none

Joanne Preston

  • none

Dr Oliver Rivero

  • principal investigator for the NIHR HTA funded study HTA NIHR127489 - valuing the benefits and harms of antenatal and newborn screening programmes in health economics assessments
  • principal at Maths in Health, a health economics and outcomes research consultancy based in The Netherlands

Dr Martina Rodie

  • none

Dr Bernd Schwahn

  • received one-off honoraria and/or travel expenses from Alexion, Origin Biosciences, Chiesi, iECURE, Glasshouse Health Ltd, and Nestle Health Sciences for advice on development of new treatments for rare diseases
  • principal investigator for clinical trials of investigational medicinal products sponsored by Alexion, Origin Biosciences, Moderna, Prevail Therapeutics, Sanofi, Amicus
  • member of BIMDG and SSIEM
  • lead of international guideline development group for diagnosis and management of sulfite intoxication disorders, supported with educational grant by SSIEM
  • member of international guideline development group for diagnosis and management of homocysteine remethylation disorders, supported by E-HOD (EU grant)

Dr Mark Sharrard

  • member of the IMD screening advisory board

Professor Basky Thaliganathan

  • clinical director, Tommy’s National Centre for Maternity Improvements, RCOG/RCM
  • clinical director, the SAFE test NIPT laboratory, St George’s University Hospitals Foundation Trust
  • clinical director, Fetal Medicine Unit, St George’s UHFT
  • emeritus editor of Ultrasound in Obstetrics and Gynecology medical journal
  • multiple commercial and non-commercial research grants – EU, MRC, BHF, Philips, GE, Biorthm
  • active academic researcher in a wide range of obstetric topics

Prof Rachael Wood

  • as part of role in Public Health Scotland, responsible for development of national data and official statistics on pregnancy and newborn screening in Scotland
  • as part of my role in Public Health Scotland and honorary academic role in the University of Edinburgh, undertake research on pregnancy and newborn screening in Scotland
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