Guidance

The Personal Independence Payment (PIP) toolkit

A guide to help organisations and people in support roles explain Personal Independence Payment (PIP) and changes to Disability Living Allowance (DLA) to claimants.

From:
Department for Work and Pensions
Published
3 September 2013
Last updated
22 December 2023 — See all updates

This guidance was withdrawn on

This guidance has been withdrawn as it is out of date. You can find information about PIP in the Personal Independence Payment (PIP) guidance and the PIP handbook.

PIP and DLA

DLA is ending for people who were born after 8 April 1948 and for people who are 16 years old or over.

PIP has replaced DLA.

People will continue to get DLA until the Department for Work and Pensions (DWP) writes to them:

  • to tell them when it will end
  • to invite them to apply for PIP

People will continue to get DLA and not be invited to apply for PIP if:

  • they were born on or before 8 April 1948
  • they are under the age of 16

This toolkit provides information about PIP for support organisations and claimant advisers. The information can also be adapted into training for your people.

If you currently get PIP or would like to apply for it, read the PIP guide for claimants.

When PIP affects existing DLA claimants

We are inviting individuals to claim PIP when:

  • we receive information about a change in a person’s care or mobility needs
  • a person’s fixed term DLA award is due to end
  • children turn 16 years of age
  • people are on indefinite or long term awards who were born after 8 April 1948 and those who are 16 years old or over – these individuals will be invited through a random selection process as PIP progresses

Children who are turning 16 and claiming DLA will not be invited to claim PIP if either of the following apply:

  • a doctor or a medical professional has said they might have 12 months or less to live
  • they are in hospital

Invitation letters to claim PIP

We will write to the individuals at different stages throughout the PIP claim.

We have published a series of example letters sent to DLA claimants (sometimes referred to as notifications) to invite them to start a claim for PIP. You can download example letters to cover the following circumstances:

  • claimant is invited to claim PIP on reaching age 16 (PIP 0185)
  • claimant is selected to claim PIP (PIP 0201)
  • claimant is invited to claim PIP – end of fixed term award (PIP 0202)
  • claimant is invited to claim PIP – change of condition (PIP 0204)

These letters are examples only. There are more letters covering different scenarios.

Existing DLA for child claims and PIP

We will write to parents or guardians of young people who are currently getting DLA when the young person is 15 years and 7 months old. This letter will explain that the young person will need to claim PIP when they turn 16 years old.

The letter will also ask:

  • whether the young person will need an appointee when they turn 16
  • what bank account their money needs to be paid into after they turn 16

Two months before the young person’s 16th birthday, at 15 years and 10 months old, we will send a letter to the parents or guardians to remind them that the young person will be invited to claim PIP at 16 years old.

At age 16, a letter will be sent to the young person, or their appointee, to invite them to claim PIP. It will explain:

  • how to claim PIP and by when
  • that if they do not claim PIP by the date given on their letter, their DLA will stop
  • that their DLA will continue to be paid (even if their DLA award was due to end) as long as they send us any information we ask for and go to a face-to-face consultation, if one is needed

If the young person has not received their letter 28 days before they turn 16 years old, parents or guardians need to contact the Disability Service Centre. Payments could stop if they do not do this.

Young people claiming DLA will not be invited to claim PIP if either of the following apply:

  • a doctor or a medical professional has said they might have 12 months or less to live
  • they are in hospital

Visit Disability Living Allowance (DLA) for children for more information.

When we told DLA claimants about PIP

All existing DLA claimants got more information about PIP in their usual annual letters. This tells them what their new benefit rate will be.

How will DLA claimants be reassessed?

For information about how existing DLA claimants will be reassessed for PIP, read the PIP handbook.

‘DLA is ending’ information

You can find out more about:

  • how DWP is raising awareness that DLA is ending
  • what claimants need to do next
  • where claimants can go to get the information they need to make a decision about claiming PIP before their DLA ends

You can find more information in the Disability Living Allowance (DLA) for adults.

How individuals make a claim to PIP

To start a new PIP claim, contact DWP through the details provided in the PIP claimant guide. This includes the details of a Next Generation Text relay service and a British Sign Language (BSL) video relay service.

Once a claim has been made, DWP will register the claim and send the individual a ‘How your disability affects you’ (PIP2) form to fill in, together with an information booklet:

Where an individual cannot call us, or needs extra help and has no one to support them making a claim by telephone, they can write to us to request a PIP1 claim form:

Personal Independence Payment New Claims
Post Handling Site B
Wolverhampton
WV99 1AH

The PIP1 claim form captures the same basic information we take over the phone. It is sent along with PIP1 A1: additional information.

The forms will be personalised to the individual who asked for them and should not be copied or used for other people. We have published examples of the PIP1 forms for information only.

When individuals will get the decision on a PIP claim

The actual time to get a decision on a PIP claim depends on the person’s circumstances. We are dealing with claims as quickly as we can. Any delays experienced in the new claims process will not change the date when individuals are paid from, which is:

  • the date their claim is registered, or
  • a later date, if they submit a claim but have not yet completed the 3-month qualifying period

Existing DLA claimants will continue to get DLA until a decision has been made on their PIP claim.

PIP reviews

The length of time that PIP is awarded is based upon each claimant’s individual circumstances. PIP awards can vary in length. The shortest award is 9 months. The longest is an ongoing award with a ‘light touch’ review at 10 years.

The letter they receive when their claim is approved will tell them when their claim will end and if it will be reviewed. We do regular checks on awards that need a review to make sure that everyone continues to receive the most appropriate level of support.

Awards with a specific end date and review date

We will write to claimants before their PIP end date to see if their needs have changed. They will be asked to complete a form called ‘Award Review – How your disability affects you’ and sent some notes to help them fill it in. We have published examples of the Award Review forms for information only:

Once the form has been reviewed by DWP, the claimant might be asked to attend an assessment with a health professional to discuss how their condition affects their daily life.

A decision letter will then be sent to the individual telling them what will happen with their PIP. If their needs have changed, their PIP award might be increased, reduced or stopped.

If their needs have not changed the award may be maintained at the same rate with a new award end date and new review period

Ongoing awards with a ‘light touch’ review

This is for claimants who have:

  • very stable needs which are unlikely to change over time
  • high level needs which will either stay the same or get worse
  • a planned award review date due on or at State Pension age
  • a special rules for end of life claim due when of State Pension age

These claimants would not usually be expected to have a face-to-face assessment at review.

Your organisation and PIP

We have published information and guidance specifically aimed at helping your organisation with the introduction of PIP.

In addition:

Quick guides to PIP

We have published short guides about PIP, including a:

  • PIP quick guide – this gives a summary of PIP and the changes to DLA and is tailored for specific groups
  • postcode map – this shows which postcode areas the assessment providers (Independent Assessment Services and Capita Health and Wellbeing) cover

PIP handbook

Read the PIP handbook for detailed information about the benefit, including:

  • conditions of entitlement
  • assessment criteria
  • how to make a claim
  • reassessing existing DLA claimants for PIP
  • special rules for end of life
  • how to dispute decisions
  • access to other benefits and services that claimants may be entitled to

Information for specific groups

We have published information and guidance on PIP for:

What to do with DLA claim forms

You can continue to order and provide DLA claim forms for children under 16 (‘DLA1 Child’ or ‘DLA1A Child’) and Attendance Allowance forms for over 65s (‘AA 1’ or ‘AA 1A’).

You should destroy all ‘DLA1 Adult’ and ‘DLA1A Adult’ forms, including large print and Welsh language versions – do not give them to claimants.

Updates to this page

Published 3 September 2013
Last updated 22 December 2023 + show all updates

  1. Link removed to 'annual letters' as that page has been withdrawn. In addition the section headed 'Leaflets about PIP' has been removed as the leaflets are no longer relevant to PIP.

  2. Created AR2 award review: how your disability affects you (10 year, ‘light touch’ review) (for reference only) and also Adolygiad dyfarniad AR2: sut mae eich anabledd yn effeithio arnoch (adolygiad 10 mlynedd ‘cysylltiad ysgafn’) (er gwybodaeth yn unig) Updated PIP1: claim form (for reference only), Welsh: PIP1W: ffurflen gais (ar gyfer cyfeirio ati yn unig), PIP2: how your disability affects you (for reference only) and also Welsh: PIP2W: sut mae eich anabledd yn effeithio arnoch (ar gyfer cyfeirio ati yn unig). Deleted PIP2: how your disability affects you: information booklet and also Welsh: PIP2W: sut mae eich anabledd yn effeithio arnoch: llyfryn gwybodaeth.

  3. Replaced PIP1(Welsh): Sample Personal Independence Payment claim form (for reference only) with updated version.

  4. Sample Personal Independence Payment claim form replaced to support the transition from the European Union.

  5. Updated 'Ongoing awards with a ‘light touch’ review' section to include information for State Pension age PIP claimants.

  6. Added information about PIP reviews, including samples of the forms and booklets that are provided to claimants.

  7. Added revised PIP1: Sample Personal Independence Payment claim form (for reference only) - English and Welsh and PIP2: How your disability affects you (for reference only) - English and Welsh.

  8. Added a link to new PIP video guides with British Sign Language (BSL).

  9. 'Atos' changed to 'Independent Assessment Services'.

  10. First published.

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