Guidance

Congenital Diaphragmatic Hernia: information for parents

This leaflet can help healthcare professionals speak with people, following suspected or confirmed diagnosis of congenital diaphragmatic hernia (CDH).

• From: NHS England
• Published: 1 April 2012
• Last updated: 3 February 2025 — See all updates

Applies to England

Documents

Congenital diaphragmatic hernia: information for parents

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Details

This publication explains the condition congenital diaphragmatic hernia, identified by the fetal anomaly ultrasound scan.

The document includes information about:

• what the condition is
• how common it is
• how it is diagnosed and confirmed
• what treatment is available
• what the outlook for the baby is
• what happens next
• how likely it is to happen in future pregnancy
• where more support and information is available

Published 1 April 2012
Last updated 3 February 2025 + show all updates

1. 3 February 2025

   Changed lead organisation to NHS England. Removed references to PHE.

2. 9 March 2020

   Replaced PDF with an updated HTML document.

3. 11 June 2018

   Updated patient information leaflet.

4. 1 April 2012

   First published.