Guidance

Edwards' syndrome (T18): information for parents

This information is for parents whose baby may have Edwards' syndrome. It can help them talk through the next stages of their care with health professionals.

From:
NHS England
Published
1 April 2012
Last updated
3 February 2025 — See all updates

Applies to England

Documents

Edwards' syndrome: information for parents

HTML

Details

Edwards’ syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:

  • what the condition is
  • follow-up tests and appointments
  • what the outlook for the baby is
  • what happens next
  • how likely it is to happen in future pregnancies
  • where more support and information is available

Refer to how to print digital leaflets if you need to provide a copy of this guidance to people who cannot access the internet.

Updates to this page

Published 1 April 2012
Last updated 3 February 2025 + show all updates

  1. Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE. Added statements on data usage and opt-out.

  2. Converted guidance from PDF to HTML and made some slight changes to terminology.

  3. First published.

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