Guidance

Edwards' syndrome (T18): information for parents

This information is for parents whose baby may have Edwards' syndrome. It can help them talk through the next stages of their care with health professionals.

Documents

Details

Edwards’ syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:

  • what the condition is
  • follow-up tests and appointments
  • what the outlook for the baby is
  • what happens next
  • how likely it is to happen in future pregnancies
  • where more support and information is available

Refer to how to print digital leaflets if you need to provide a copy of this guidance to people who cannot access the internet.

Contact the Public Health England (PHE) Screening helpdesk with any queries about this publication, making sure you include its full title.

Updates to this page

Published 1 April 2012
Last updated 1 December 2020 + show all updates
  1. Converted guidance from PDF to HTML and made some slight changes to terminology.

  2. First published.

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