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Baby carries a gene for unusual haemoglobin: description in brief

Information for parents of babies who carry a gene for unusual haemoglobin.

• From: NHS England
• Published: 1 January 2010
• Last updated: 5 February 2025 — See all updates

Documents

Newborn screening: Your baby carries a gene for Haemoglobin C

HTML

Newborn screening: Your baby carries a gene for Haemoglobin O Arab

HTML

Newborn screening: Your baby carries a gene for Haemoglobin E

HTML

Newborn screening: Your baby carries a gene for Haemoglobin D

HTML

Information for mums and dads: your baby carries a gene for unusual haemoglobin (Bengali)

PDF, 3.19 MB, 16 pages

This file may not be suitable for users of assistive technology.

Request an accessible format.

If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Information for mums and dads: your baby carries a gene for unusual haemoglobin (French)

PDF, 2.47 MB, 9 pages

This file may not be suitable for users of assistive technology.

Request an accessible format.

If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Information for mums and dads: your baby carries a gene for unusual haemoglobin (Urdu)

PDF, 3.2 MB, 16 pages

This file may not be suitable for users of assistive technology.

Request an accessible format.

If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Details

Guidance for parents of babies found to carry gene for Haemoglobin C, Haemoglobin O^Arab, Haemoglobin E or Haemoglobin D following their newborn blood spot screening test.

This information is available in A4 PDF format (in English) to print out and provide for people who cannot access digital information. For more information, see the ‘order printed leaflets’ section of our guidance on how to access and order leaflets.

Published 1 January 2010
Last updated 5 February 2025 + show all updates

1. 5 February 2025

   Updated NHS England contact information. Removed 'for print' files as these can be printed from the HTML versions

2. 2 December 2021

   Added plain A4 PDF versions for printing, to provide for people unable to access this information online.

3. 21 January 2021

   Public information leaflet updated in accessible format with separate HTML attachments for babies that carry gene for haemoglobin C, haemoglobin O Arab, haemoglobin E and haemoglobin D

4. 19 April 2018

   Updated with new statement on use of personal data and copyright.

5. 14 September 2017

   Updated leaflet artwork.

6. 1 January 2010

   First published.