NHS sickle cell and thalassaemia (SCT) screening programme

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Services

• Sickle cell and thalassaemia screening: family origin questionnaire

  Essential elements for implementation of the family origin questionnaire (FOQ) to help assess if a person is a likely carrier for sickle cell and thalassaemia (SCT).

• Data submission template: maternity service

  Data reporting template for period 1 January to 31 March 2024, with guidance for NHS antenatal and newborn screening programmes in England.

• Antenatal screening programmes: annual standards data collection

  Data collection template for the annual collection of data to measure performance against programme standards.

• Sickle cell and thalassaemia screening: antenatal lab data form

  Forms for sickle cell and thalassaemia (SCT) screening laboratories to send antenatal data to the national programme.

• Template letter: sickle cell and thalassaemia screening for parents

  Use this letter to inform mothers about their carrier result, as well as invite the biological father for a blood test.

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Guidance and regulation

• Screening tests for you and your baby (STFYAYB)
  • Guidance
  • 3 July 2024
  • NHS England and Office for Health Improvement and Disparities
• Screening tests for you and your baby: easy guides
  • Promotional
  • 20 July 2021
  • Closed organisation: Public Health England
• NHS population screening: access and order leaflets
  • Detailed guide
  • 27 August 2020
  • Closed organisation: Public Health England
• NHS population screening: education and training
  • Detailed guide
  • 11 July 2023
  • NHS England
• Managing safety incidents in NHS screening programmes
  • Guidance
  • 27 March 2024
  • NHS England

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News and communications

• Sickle cell disease: positive result referral template letter
  • 4 December 2017
  • Closed organisation: Public Health England
  • Correspondence
• Sickle cell and thalassaemia screening: overview of community outreach
  • 23 February 2015
  • Closed organisation: Public Health England
  • Case study

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Research and statistics

• Annual (April 2022 to March 2023) ANNB and YPA Screening KPI Data
  • 27 June 2024
  • NHS England
  • Research
• Q3 (1 Oct to 31 Dec 2023) ANNB and YPA screening KPI data
  • 27 June 2024
  • NHS England
  • Research
• Q2 (1 July to 30 September 2023) ANNB and YPA screening KPI data
  • 14 March 2024
  • NHS England
  • Research
• 2021/22 Sickle cell and thalassaemia screening (SCT) screening report
  • 17 August 2023
  • NHS England
  • Official statistics
• Q2 KPI Screening Data (1 July to 30 September)
  • 15 June 2023
  • NHS England
  • Research

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Transparency and freedom of information releases

• NHS screening programmes: annual reports
  • 16 February 2023
  • Office for Health Improvement and Disparities
  • Corporate report

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Organisations

• Office for Health Improvement & Disparities

• UK National Screening Committee