Breast screening: very high risk women surveillance protocols
The NHS breast surveillance protocols for women at very high risk of developing breast cancer.
Applies to England
Documents
Details
Healthcare professionals working in the NHS breast screening programme should use these protocols.
They apply to women referred to the screening programme with a very high risk of developing breast cancer.
Complete the referral form when referring a woman to breast screening because she has been clinically identified as being at higher risk of developing breast cancer. It can be completed electronically or printed out and completed manually.
This publication was previously published by Public Health England, which closed on 30 September 2021.
Updates to this page
Last updated 27 September 2024 + show all updates
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Added clarification that publication was previously published by Public Health England.
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The Breast screening referral form for women at very high risk has been updated.
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Minor amend in the 'Referrals by clinical genetics services or oncology centres' section of the HTML doc.
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Updated 'Protocols for the surveillance of women at higher risk of developing breast cancer' and the referral form to clarify: which cohort of women is entitled to very high risk screening following radiotherapy to sites involving breast tissue (formerly referred to as ‘supra-diaphragmatic radiotherapy’); the breast density review process; the interval to next screening appointment following a short term recall episode; screening during pregnancy and lactation; and screening transgender and non-binary people.
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New version of the breast screening referral form for women at very high risk. Expanded information requirements in section B.
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Updated 'Breast screening referral form for women at very high risk' following an update in the breast screening IT system.
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Change to the referral form for women at very high risk. Added a section about a woman’s previous history of breast surgery.
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Update to section 3, to include treating clinician referral to very high risk screening for patients carrying a genetic mutation meeting the eligibility criteria.
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Edited sections 6.1 – process before MRI screening and 6.2 – review of background diversity in the protocols document.
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Added note to the referral form that BARD are excluded from needing to sign the declaration.
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Minor changes to all 3 documents including clarification that women already in the VHR programme can continue to be screened until their 71st birthday.
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Amended very high risk referral form.
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Reviewed, updated and reformatted guidance as HTML format.
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Added updated referral form.
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Updated high-risk referral form.
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Added breast screening referral form.
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First published.