Policy paper
UK strategy for rare diseases: 2019 update to the implementation plan for England
A summary of the strategy's progress and actions for the government and partner organisations over the next year.
Documents
Details
The UK strategy for rare diseases: implementation plan for England was published in January 2018.
This update on the strategy’s progress covers 5 main areas:
- empowering those affected by rare diseases
- identifying and preventing rare diseases
- diagnosis and early intervention
- coordination of care
- the role of research
It also sets out the actions that DHSC and partner organisations will take over the next year to implement the commitments of the strategy.